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Showing posts with the label #ChronicPain

My Muse for Advocacy

*WEGO asks: Was starting your advocacy journey a hard  decision? Were you anxious and hesitant or were  you excited and ready to share your story? Tell us  how you chose to start advocating for your  condition. Advocacy in the realm of autoimmune disease was a fluid and natural process for me. My daughter, now 26 years old, was diagnosed with Juvenile Rheumatoid Arthritis at the age of 2. I had spent her young life learning about rh factors, ana tests, and a plethora of other acronyms and abbreviations pertaining to her disease.  When Alesha was diagnosed, I felt incredibly isolated. It was such a difficult place to be because I struggled with undiagnosed clinical depression. (It would be 8 more years before I realized that diagnosis), but my little girl needed me, so  I stepped out of that random and very dark place to tackle the beast called Arthritis(JRA).  Such a motivating factor gave me a feeling of power like I could divide and c...